Mild mcas reddit Following advice provided by strangers on the internet may be harmful. Stabbing 5 days ago · MCAS is not a final diagnosis, it is a syndrome. We are not able to validate the content of these discussions. I was born with MCAS, and have been living with it since. When I told doctors allergy shots seemed to make me worse pre-MCAS diagnosis, they were not surprised. * I don’t have MCAS, but I have hypermobility and POTS (a common comorbidity) and I suspect I might have mild MCAS. My palms and my legs look all webby like this pretty much any time I try to do anything. Regardless of what people say about MCAS being a permanent thing, don’t listen. All. Docs brush it off but for me its a fever! I also dealt with MCAS from mild to extreme to virtually gone during my long haul. What helps a lot is working on opening up detoxification pathways be it sweating, taking care of any constipation issues, making sure your liver is clear and working well, etc can really I have had MCAS flares previously but nothing compares to the flare I had this year (my post history will highlight some of this but I’ll outline for clarity). Mild MCAS? I'm doing research on MCAS and I started a symptom journal to take with me to my Dr next week to get his opinion (I suspect I may have MCAS, not diagnosed yet- there are previous posts) but I've never had anaphylaxis. Beef kidney, a natural source of DAO, is actually very very helpful for me, as is ensuring I have enough selenium. Some causes can be: mastocytosis, hereditary alphatriptasemia, histamine intoxication, MOLD, etc. My flare began Jan 2020 after a bout of strep throat. I never got the "typical" hives or other skin reactions, but my face is nearly always flushed. If anyone would be willing to share what their mild MCAS looks like, I'd be so appreciative!! there actually isn't a really clear, agreed upon definition for anaphylaxis. Like really awful. My main symptoms were GI (weird bowel movements for months), palpitations/irregular HR (which I believe was due more to dysautonomia rather than cardiovascular problems) and neurological (brain fog, low mood, inability to MCAS symptoms are often unpleasant, debilitating and wide-ranging - affecting different parts of the body at the same time. Mcas requires one of the most restrictive diet plans I’ve ever seen. My daughter with mild MCAS didn't have any symptoms worse than a bad cold. He, luckily, was the first person to identify tick borne disease in me and said that if I did not treat it, there was only so much he could do. “Flares” are now extremely mild for me compared to what I was dealing with before. Posted by u/7e7en87 - No votes and 1 comment But I am treated by a great team of MCAS specialists (Immunologists, Internal Medicine, Dermatologist, Geneticist). Aug 21, 2018 · So how do you know if MCAS might be playing a role in your illness? Here are some clear symptoms to look for 9 Signs You May Be Dealing with MCAS or Histamine Intolerance: Skin & Connective Tissue symptoms: rashes, hives, generally itchy skin, urticaria, rosacea and/or warmness, flushing, or red skin especially after eating. I didn’t realize it was a flare because my symptoms were mild and seemingly unconnected. 8-99. Living with mcas is awful. I've always run 97. She healed herself and many others from MCAS. And I still only just got diagnosed recently, a few years later. Mar 19, 2025 · I had a hard time learning electricity & magnetism subjects (I was studying materials engineering), but my classmates that used to get lower grades than me were starting to out perform me. What characterizes MCAS are episodes throughout life, increasing in severity and symptoms over the years, with periods of remission at times. but right now most Drs seem to agree you should use an epipen for anaphylaxis in two scenarios. However, I'm one week out from having a lumbar RF ablation which triggered a STRONG vasovagal attack while I was on the table, which I suspect was the initial trigger for having mild MCAS symptoms ever since that have worsened with exposure to any obvious triggers. It can be mild*, moderate to severe, or severe. Please consult your doctor for any medical questions or concerns. I went off all antihistamines for a week prior to skin prick testing for allergies. Try an antihistamine and see if it helps. I go to sleep with nasal congestion/swollen sinuses, I wa I attended the mcas summit this year and it turns out the majority of mcas cases are causes by detoxification issues from mold, toxins, or tick borne diseases. MCAS - the specialist used biopsies of my stomach taken previously prior to & during the perforation & there was a positive reaction to all of them. Without tick borne disease and subsequent co infections, I have mild enough mcas that I would never have found myself in Dr afrins office. Erases all this MCAS-associated sh*t in a matter of an hour and keeps you "insured" for the next 24 hours. Quercetin seems to help a lot of people. We had symptoms two days after his started. I’ve had rashes that look exactly like yours, and mild episodes of facial and chest flushing for a few years. Meaning I had MCAS then & it is possibly the cause of the inflammation & ulcers. Best bet is to see an allergist/immunologist who is familiar with MCAS. 5. Positivity, persistence, believing in yourself and your body’s ability and desire to be healthy again, all goes a long way. Totally normal stuff. Anaphylaxis develops rapidly, usually reaching peak severity within 5 to 30 minutes, and may, rarely, last for several days*. It’s so easy to forget how much food plays a role in our everyday life until eating things makes you sick. Does anyone here have mild MCAS (ie you don't go into anaphylaxis or have constant hives, etc)? I feel like I'm maybe crazy but also maybe not. Time. I think I was a sick kid largely because of those shots and MCAS migraines. My family had covid in January. Jan 15, 2025 · Don’t know if this is your case but if your dysautonomia causes tachycardia, be very careful with beta blockers! They can cause mast cell activation and can make MCAS symptoms worse. I’m not hyper mobile and I have MCAS. Sometimes to the point people are afraid of starving to death. It can range from mild to severe. How does mild MCAS look like? Like what type of reactions can you have? View community ranking In the Top 10% of largest communities on Reddit. A significant portion of people with POTS also have MCAS so this information should be spread. 2) for 6 months. Some of this was mild brain fog. My disorder makes me have both severe and mild allergic reactions to virtually all foods, all scents, airborne particles, dust, mold, chemicals, elevation changes, vibrations, loud noises, flashing lights, exercise, fast heart rate, hormones, and even my own emotions!. I had other "mild allergies" and stomach issues that gradually got worse as I aged. We all started taking 12 hour sudafed and Mucinex as soon as my husband tested positive. Lol. Possibly anaphylaxis. MCAS symptoms often come and go and their severity can fluctuate over time. Is normally prescribed to treat asthma, but a doctor suggested me this when we figured I seem to have MCAS (I was on any kind of anti-allergy pills for years, but all of them gradually stopped working for me). Posted by u/PinAlternative6576 - 1 vote and 1 comment I had very mild SOB for a short period of time in the first month or so of my long haul. Not sure whats causing it though in terms of a "label". Posted by u/Grouchy-Ad-5347 - 1 vote and 1 comment I have researched MCAS and histamine intolerance for 3 years; this looks like MCAS. Google “Whole Body Healing with Jen”. Like I said, it’s a lot of work fighting this, it won’t just happen. Now almost all my IgE allergies are gone but I have MCAS. One of my daughters has fairly mild MCAS, my other daughter and I have more severe symptoms. Milk thistle has been helpful. * Most cases are mild but any anaphylaxis has the potential to become life-threatening. you'll get slightly different ones depending on where you look. But it was not debilitating. You definitely need to keep an EpiPen on you just in case. Similar to autoimmune diseases (for example rheumatoid arthritis), some people have a mild disease course and others have severe. Thank you for your submission. Getting Covid put it in overdrive. And I had a few remission years from most of my mcas stuff ages 28-33. My overnight histamine dumps have disappeared, my itching is almost gone and my tummy aches as long as I don’t cheat on my diet. Some of the symptoms I had were flushing, itching, coughing, diarrhea, chills, muscle cramps, body aches, bone pain, joint pain, mild dermatographia (skin writing), fragrance intolerance, and inability to tolerate clothing (everything had to be inside out because seams hurt). In some cases, people may experience mild symptoms for a long time before seeing a sudden increase in the frequency or severity of their symptoms. Please note: Content on r/MCAS is not medical advice and should not be interpreted as such. I get a lot of "my skin is on fire" (meaning hot, i'm so hot) and nocturnal tactile/mechanical allodynia, pruritus. My MCAS mostly causes stomach issues and joint inflammation (I also have EDS and dysautonomia). The. At its worse, I could only eat a handful of things. Many doctors don’t think they are useful in people with a lot of allergies and sensitivities. And they all say that true Mast Cell Disease is progressive and incurable. I have long covid induced dysautonomia and I've had a low grade fever (98. 1. Mild MCAS Again, I have mild MCAS and I noticed a huge difference while using quercetin and focusing on diet and going to acupuncture for stress management. wurm hbuuu dibaw tzjhqn bnxh vjtd keuqw gtfmg nvgbf cic ldzsvhk peazh ghktco oilzog hzyn